Kicking Cancer

Prevention Through Healthy Living

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So Far so Good. Day #4 of Chemotherapy Dose #1

Thanks everyone for all of the messages.  I appreciate every click in my blog, so thank you for viewing, and thanks to those who leave comments too.  I apologize that I don’t get back to everyone, but I know as part of my support team that you understand.

I have struggled a bit from the beginning of “going public” because this is a time where I should be going inward and spending a lot of time focusing on that quiet healing, rather than being so outward and sitting here typing on a blog (for instance what would seem to feed me more right now…a few minutes blogging in front of this screen or a few minutes of deep breathing, bathing my organs, maybe doing  a few qigong exercises before going back to sleep for  a few hours???)  We all know the answer!  But being on the computer, doing the ride, sharing my story with people on the road and in the media has all fed me in another and important way so I am really trying to strike a balance.

So, I have not talked much about the chemotherapy itself mainly in an effort not to bore!   In a nutshell, I received two chemotherapy medicines (I prefer the term medicine to drug) Adriamycin (102 mg), and Cytoxan (1020 mg).  I also received two anti-nausea medicines through the IV.

So, those medicines are currently cruising my body on a search and destroy mission targeting all rapidly dividing cells.  This is why there are side effects such as hair loss, mouth sores, skin changes, among other crazy things you would never wish for yourself or anyone else.   Someday perhaps they will find a way to target only cancer cells, but until then it is the best we have with the chemotherapy route.  So, as I begin to experience these less than ideal side effects, I will go to a place of “Sweeeet!  The medicines are working!  Go medicine go!  Nicole 10, cancer zero…. And btw don’t worry about me losing my hair in a few weeks (likely), I intend to rock the chemo/cancer patient look.

So, I am entering Day 4 and so far have experienced a small amount of nausea.  I really can’t complain.  As I mentioned in a previous post, I had Jin Shin Jyutsu treatment by Corliss Chan, a certified practitioner at the Marin Cancer Institute,  while in the chair during chemotherapy as part of the integrative “whole person” program provided at the Center.  The harp music in the chair was also beneficial on a healing level.   Jin Shin Jyutsu facilitates the body’s healing capacity through helping balance its energy.  It supports the body, mind and spirit through gentle touch, and helps many cancer patients experience reduced fatigue, anxiety, stress, and physical discomfort.  Furthermore it increases energy, relaxation and just plain’ ol feels nurturing!

The following day in Arcata I had acupuncture treatment from Jessica Baker at Jade Dragon Medical Spa.  She has been on my support team since before the cancer diagnosis as we were working toward getting rid of the lump through chinese herbs and mushroom tinctures and improving chi flow through my meridians.  Really tumors are blocked energy, granted they are sometimes composed of gnarly cells that have gone haywire, or in my case, pleuromorphic (many changes).  I believe big time in the ‘east meets west’ medical model, and Jessica was relieved to know that I was also following the medical route with our awesome local surgeon, Doctor Mahoney.  At any rate, acupuncture as usual was relaxing and nurturing and I am sure helping me through these days.

The next morning I went to see Zena Bardelas of Misty Mountain Healing Arts, and got more of the above….qigong produces similar benefits as Jin Shin Jyutsu.  There are external exercises (that you do yourself–like tai chi), and internal which are mostly performed on a table.  I usually do a bit of both as Zena has been on my team a longtime too (pre-mastectomy), but post chemotherapy I opted to just jump on the table.

Frankly, I do not know what I would do without all of this “integrative” care.  It makes me feel so good.  Not only do these woman perform their healing powers via needles, hands, energy, but we sit and talk about what is going on before the sessions and I learn so much about diet, liver care, kidney care, and the importance of going inward.  I think I am the only cyclist in the wind on the coast who wore a silk scarf!  It is my new thing…keeping my body protected from the elements.  The old Nicole would be flying around in a tank top in the wind.  Especially during chemotherapy when I need to keep my immune system at full strength this is important, but it will serve me my entire life.

The Patch Picks Up My Story

Sweeeeeet!  Spreading awareness and hopefully raising some money.  Derek Wilson at the Larkspur-Corte Madera Patch wrote a story about me and my ride.  Click here to read the first media about my story and kickingmycancer.com.

Dusting off the bike today!  Feeling pretty good.  Range of motion continues to improve, and I feel like I could be back to my old self (sans right breast) by departure on May 15th.

The Tumor and Beyond

When all was said and done, the tumor was 14 centimeters (5.5 inches) large and had spread into four lymph nodes (eighteen lymph nodes were pulled out but only four had cancer cells present).  The tumor is Stage III  based on size and lymph involvement, and a few other characteristics. The tumor had “tendrils” heading toward my armpit which were difficult to remove and my surgeon was unable to get a clean margin up there.  She went back in and scraped out as much as she could, but there may have been some residue left behind.  During radiation (after chemotherapy) I will  get an extra dose in that region.

My place of treatment for the next several months is called Marin Cancer Institute, which is a nationally recognized center for comprehensive cancer care.  I was impressed with the energy in the building and the fact that so many modalities of care are housed within (including acupuncture, physical therapy, massage, nutrition, guided imagery, radiation, chemotherapy, offices of excellent surgeons and oncologists).  The Marin Cancer Institute physicians and medical staff partner closely with the Marin General Hospital’s Center for Integrative Health & Wellness, to provide these integrative modalities to all cancer patients and their families.  The result is a seamless, “whole person” approach to my health and healing.

Cycling to my First Chemotherapy

I have decided to ride my bicycle to my first chemotherapy appointment which is scheduled for Monday, May 21.  The 320 mile ride will take six days.  My family will be my sag wagon, as they will follow in an RV.  I will follow Routes 101 and 1.

Through my ride I hope to bring awareness about the disease of cancer, and inspire those going through treatment (or family or friends going through treatment) to have the best possible outlook, and attempt to not let the disease “pull them down” too much emotionally or physically.   Of course there will be times of despair, fatigue, and other hard times, but looking for the positive where one can find it and being able to bounce back from those lows to find moments of joy and peace can be a goal that may make a difference during the difficult experience.

It will have been 26 days since my mastectomy.  My body is healing nicely and I am feeling like I will be up for the ride.  I have received blessings from my supportive doctors (oncologist, surgeon, and physical therapist) for this endeavor, and have been instructed on care for my right arm which is at risk for lymphedema due to removal of 18 lymph nodes at the time of mastectomy.  I will be diligent in checking measurements on my arm and watching for other changes multiple times per day.   I will need to cancel the ride if my body is not up for it and will be psychologically and logistically prepared to do so.   Either way it will be a fun adventure for my family and a fabulous way to spend a week together slowly enjoying the majestic redwoods and scenic coastal northern California.

From Lump Discovery to Mastectomy

On December 27th, 2011 I found a lump on my right breast.  In early January I met with my primary doctor who did not feel cancer, and since I was breastfeeding my youngest—chalked it up to that.

She scheduled an ultrasound which resulted in a letter in my mailbox that said “Congratulations, you do not have cancer”.  Phew.  But what was it???

I  requested a referral to a specialist Dr. Ellen Mahoney who did a fine needle aspiration of the mass, and two days later was told the pathologist found atypical cells.  hmmm.   The subsequent biopsy and pathology revealed invasive lobular carcinoma.

A local oncologist promptly began to plan and schedule all of the diagnostic tests one needs once delivered this prognosis.  A PET-CT scan, mammogram, MRI, blood work, echocardiogram.   She also began to discuss chemotherapy options.  Sounded good to me, I was ready to begin the battle with cancer, but my intuition was telling me that the tumor needed to be removed.

In the meantime I decided to get a second opinion from an oncologist in Marin County where I was raised. I had been the nanny of Dr. David Gullion in my early twenties when he was developing, along with two partners, the beginning of a “holistic center” for cancer patients.  I never imagined I would twenty years later be utilizing the services of that center.

Dr.  Gullion took my pathology to the ‘tumor board’ that Tuesday.  The group discussed the particulars of my cancer (lobular which means the cells originated in the lobules, estrogen positive, progesterone positive receptors, and a protein known as HER2/nue, negative).  It was unanimous, they all believed that chemotherapy would be ineffective at shrinking this type of tumor.  He suggested I come to meet their team.

I first met with oncologist Dr. Jennifer Lucas, who btw was a few years ahead of me at Novato High School.  She was knowledgeable, direct, and informative about the therapy (chemotherapy and likely radiation) that I would need post-surgery, and she walked me down the hall to the surgeon.  I must say I was completely floored by the directness of the surgeon, Dr. Leah Kelley who said  ”You need a mastectomy immediately and I will beg, borrow and steal from other doctors and move patients around to get you a spot in the OR as soon as possible”. So, my family’s one night stay in Marin turned into a ten day visit with family, during which we borrowed kids clothes, a stroller, a juicer, among other things.  At that moment my second opinion doctors became my main doctors.  What they were saying resonated with me.

The silver lining?  Since my diagnosis I have honed in on what is really important in my life.  Mainly, my spiritual and physical health, and my family which includes two small children (ages two and five) and a loving, supportive husband.

ALWAYS trust your instincts and keep pushing for more information if you are not satisfied with a result/diagnoses.  For more information about lobular cancer which tricked my primary doctor and  the ultrasound radiologist check out this document (PDF).

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